Standard of Care or Clinical Trials: How Do Patients Choose Between Their Options? Conversation with Carole Scrafton
Meet Carole Scrafton, a passionate patient advocate and founder of Flutters and Stutters, a patient organization dedicated to improving the lives of those affected by chronic illnesses and rare diseases. In this episode, Carole and Maya explore how Standard of Care shapes the patient journey and experience throughout healthcare, going beyond just access to treatment.
Follow Maya Zlatanova: https://www.linkedin.com/in/mayazlatanova/
Follow Carole Scrafton: https://www.linkedin.com/in/fibroflutters-655756108/
Flutters & Stutters: https://www.facebook.com/FibroFlutters https://www.linkedin.com/company/flutters-and-strutters/posts/?feedView=all
Follow Carole Scrafton: https://www.linkedin.com/in/fibroflutters-655756108/
Flutters & Stutters: https://www.facebook.com/FibroFlutters https://www.linkedin.com/company/flutters-and-strutters/posts/?feedView=all
- (00:00) - Introduction and Importance of Standard of Care
- (02:22) - Standard of Care from a patient's perspective
- (05:50) - Carole's patient journey
- (11:00) - Factors Influencing the Decision to Join a Clinical Trial
- (21:49) - Standard of Care Across Countries
- (25:47) - The Role of Patient Engagement in Clinical Trial Protocol Development
