Patient Engagement and Standard of Care in Rare Disease Trials with Orit Rindner
In this episode of Trials with Maya Z, Maya and patient expert and advocate Orit Rindner discuss the intersection of patient needs and clinical trials, highlighting real-world challenges and insights from rare disease research:
- The impact of standard of care on patient willingness to join clinical trials
- Challenges in rare disease trials and patient recruitment
- The importance of aligning clinical trials with patient realities
Follow Maya Zlatanova: https://www.linkedin.com/in/mayazlatanova/
Follow Orit Rindner: https://www.linkedin.com/in/oritrindner/
Follow Orit Rindner: https://www.linkedin.com/in/oritrindner/
- (00:00) - Chapter 1
- (00:00) - Introduction to Clinical Research and Patient Advocacy
- (02:28) - The Intersection of Patient Advocacy and Clinical Trials
- (04:49) - Patient Perspectives on Clinical Trials
- (06:47) - Engagement of Patients in Clinical Trial Design
- (10:11) - Isolated vs multidisciplinary approach
- (12:27) - The Role of Patient Advocates in Clinical Research
- (16:12) - Impact of Current Events on Clinical Research in Israel
